For many of us, Alzheimer’s and
dementia have been filed away as “later in life” concerns.
We think about them when we are
caring for a parent. We think about them when an auntie starts repeating
herself. We think about them when somebody at church begins forgetting names,
missing appointments, or getting confused about familiar things.
But what if we are waiting too
late to talk about memory?
That question feels personal to
me for two reasons.
During my Medicare wellness visit I
completed the cognitive exam, for the first time. Also I am enrolled in the
Cognitive Health Study connected to Boston University’s Black Women’s Health
Study. The Black Women’s Health Study
has followed thousands of Black women for decades, and the five-year Cognitive Health Study is looking at
changes in thinking and memory over time among Black women between the ages of
45-65.
When I think about that, I do not
just think about research. I wonder why I had not had a conversation about
cognition or memory prior to those events. Then I think about mothers, sisters, aunties, church mothers,
caregivers, professionals, and women who have carried everybody else for years
while quietly wondering, “Is my memory changing?”
If we are honest, many of us have
laughed about our forgetfulness. We walk into a room and forget why we came in.
We put the phone down and then call somebody else to help us find it.
We forget the name of the person we just saw last week. We open the
refrigerator and stand there like the answer is supposed to reveal itself.
My husband and I still laugh about
something that happened after both of our first colonoscopies. After my procedure,
while I was in recovery, he came back to help me get ready to leave. Because of
the medication used for sedation, I kept asking him the same questions over and
over again. “What did the doctor say?” He answered me. A few minutes later, I
asked again. “What did the doctor say?” He answered me again. Then I wanted to
know what he had been doing while he waited. “What have you been doing? Drinking
coffee?” He said yes. Then I asked, “In the same room?” And apparently, I asked
that more than once too. To this day, when I ask my husband what he has been
doing, he may answer, “Drinking coffee in the same room.”
And we laugh.
It is funny because we know that
the reason I couldn’t remember was because I was coming out of sedation. The
staff had already warned him that the medication affected my ability to form
new memories while it was still in my system. So I did not remember that I had
already asked the question or that he had already answered it. That kind of
memory lapse makes sense.
But it does make you think. It
is funny when there is a clear explanation. It feels different when we
start asking the same questions, missing the same details, or forgetting things
repeatedly without medication, without sedation, and without an obvious reason.
I am not trying to scare you,
so let me be clear. Every forgotten word is not dementia. Every misplaced key
is not Alzheimer’s. Every moment of brain fog does not mean something terrible
is happening. Sometimes it is stress or a lack of sleep. Sometimes it is grief,
menopause or hormonal changes or medication. Sometimes it’s thyroid issues,
blood sugar changes, blood pressure problems, depression, anxiety, or simply
too much on our minds and too little recovery for our bodies.
But some patterns deserve
attention. That is why I believe we need to have memory conversations
earlier. Not because we should live in fear or self-diagnose ourselves. Not
because every memory slip is a crisis, but because waiting until something is
obviously wrong may mean we have waited too long.
Black
Americans are at a higher risk for Alzheimer’s and other dementias than
White Americans, yet we are also too often diagnosed later, dismissed sooner,
or not taken seriously when we raise concerns. For Black women, that
combination matters. We cannot afford to ignore changes nor can we afford to have
our concerns brushed off as stress, attitude, aging, or “you just have too much
going on.” Because yes, we may have a lot going on.
Many of us are working, caregiving,
leading, serving, praying, showing up for family, showing up for church,
showing up for everybody else, and trying to keep ourselves together in the
process.
But being busy does not mean our
brain health should be ignored. Being strong does not mean we should suffer
silently. Being spiritual does not mean we should avoid medical conversations.
And getting older does not mean
every change should be dismissed as “just age.” There is a difference
between occasional forgetfulness and a pattern that affects daily life.
It is one thing to forget why you
walked into a room. It is another thing to keep getting confused in familiar
places. It is one thing to misplace your keys. It is another thing to put
important items in unusual places and have no memory of doing it. It is one
thing to forget a name and remember it later. It is another thing to struggle
with familiar names, conversations, or tasks more often than usual. It is one
thing to miss an appointment once. It is another thing to repeatedly miss
bills, medications, meetings, or responsibilities you normally manage well.
Patterns matter. Changes matter.
And the people close to us may
notice things before we are ready to admit them. That can be uncomfortable.
Nobody wants to hear, “You already asked me that,” or “Mom, you told me that
three times,” or “You seem different lately.” But sometimes love sounds like
paying attention.
And sometimes wisdom sounds like
making an appointment. I know this is tender because memory is not just about
information. Memory is personal. Memory is how we hold our stories.
Memory is how we recognize our people. Memory is how we manage our homes, our
work, our medicine, our money, our ministry, and our independence.

That is why many people avoid the
conversation. We would rather joke about it. We would rather blame age. We
would rather say, “Girl, you know I’m just getting old,” and keep moving.
But I want us to learn how to tell
the difference between laughing something off and paying attention to what
needs care. The goal is not fear, it is awareness.
Fear says, “I don’t want to know.” Wisdom
says, “Let me pay attention.” Fear says, “What if something is wrong?” Wisdom
says, “What questions do I need to ask?” Fear says, “I’ll wait until it gets
worse.” Wisdom says, “Let me talk about this before there is a crisis.” That is
where I want us to begin this month. If your memory feels different, start
noticing the pattern. When did it start? Is it getting worse, or does it
come and go?
Does it happen when you are tired,
stressed, grieving, overwhelmed, or not sleeping?
Are you forgetting words, names, appointments, bills, medications, directions,
or conversations?
Are you still able to manage your daily responsibilities? Has anyone close to
you noticed a change? Are you repeating questions and not realizing you already
asked them? Are you having trouble doing things that used to be familiar?
Write it down. Not because
you are trying to scare yourself. Write it down because your doctor cannot
evaluate what you cannot explain. Write it down because “I’m forgetting stuff”
may not be enough information. Write it down because your brain deserves more
than vague worry.
And write it down because Black
women deserve to be heard clearly when we walk into medical spaces.
We have to stop treating memory
conversations like something we only have after a crisis. We need to talk about
memory while we are still working, leading, and caregiving. While we are still
in midlife and still trying to understand what is normal, what is hormonal,
what is stress-related, and what needs further evaluation.
This month, I want to talk about
the memory conversations we need to have earlier.
We will talk about Alzheimer’s and
dementia. We will talk about hormones, HRT, and memory. We will talk about why
Black women deserve better memory conversations. And we will talk about how to
prepare for the doctor visit, because the doctor is not a mind reader.
I believe in prayer and I also
believe in paying attention. I believe in faith., but I also believe in asking
questions. I believe God cares about our minds, our bodies, our memories, and
our future. And I do not believe we honor Him by ignoring the warning
lights. So maybe the question is not, “Should I be scared?” Maybe the
better question is, “What do I need to notice, track, and discuss?” We do not
have to panic, but we do need to pay attention. Because maybe we have been
waiting too late to talk about memory.
Blessings,
Dr. Janice R. Love
In Her Right Mind
Pearls Perfected Institute